What to know
- CDC collected data for a 2-day, in-hospital clinical assessment study in Wichita, Kansas.
- CDC conducted this study to improve understanding of chronic fatigue syndrome.
- Learn about accessing data from this study through the Research Data Center.
Background
Assessments included clinical evaluation of each subject’s medical and psychiatric status, sleep characteristics and cognitive functioning. Laboratory testing evaluated neuroendocrine status, autonomic nervous system function, systemic cytokine profiles, peripheral blood gene expression patterns and polymorphisms in genes involved in neurotransmission and immune regulation. Evaluation was performed without knowledge of disease classification.
Proposal
Your request for access to restricted-use data is captured within the RDC proposal. In the proposal, please thoroughly explain your research need for access to restricted-use variables, your analytic plan, how you intend to report your results, and the exact output you need for your near final product (e.g., paper, journal article, or presentation). All sections of the proposal must be filled-out and clearly stated. Submit your proposal as one document to rdca@cdc.gov.
Confidentiality and disclosure
After the proposal is approved, all members of the research team are required to complete the Confidentiality Training. Please submit your Confidentiality Training certificate and signed, notarized non-disclosure affidavit to your RDC Analyst along with the Data Use Agreement. For more information, see: Confidentiality and Disclosure.
Review output for disclosure risk
All output submitted for a disclosure review must be the near final product and it must match the output described in your approved proposal. We will not review frequency distributions or other large volumes of output. For more information, see: Output Policies and Procedures.