A Snapshot of Autism Spectrum Disorder in Minnesota

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Findings from the Minnesota Autism and Developmental Disabilities Monitoring Network (MN-ADDM) help us understand more about autism in Minnesota, including number of children with autism spectrum disorder (ASD), their characteristics, and the age at which they are first evaluated and diagnosed.

State of Minnesota

green legend square SITE TRACKING AREA

1 in 34

Or 3.0% of 8-year-old children were identified with ASD by MN-ADDM in 2020.

1 in 34 Or 3.0% of 8-year-old children were identified with ASD by MN-ADDM in 2020

This rate is similar to the average percentage identified with ASD in 2020, which was 2.8% of 8-year-olds across all ADDM sites.

IQ data available for 86%
Of children identified with ASD by MN-ADDM

IQ data available for 86% of children identified with ASD by MN-ADDM
Half of 8 year-old children

were diagnosed by a community provider by 59 months of age.

Half of 8 year-old children were diagnosed by a community provider by 59 months of age.
8-year-old Boys

were 4.3 times as likely to be identified with ASD as girls.

8-year-old Boys were 4.3 times as likely to be identified with ASD as girls

More children in Minnesota are being identified with ASD at an early age. Children who were age 4 years were 1.5 times as likely to be identified with ASD by 48 months of age as children who were age 8 years.

More children in Minnesota are being identified with ASD at an early age. Children who were age 4 years were 1.5 times as likely to be identified with ASD by 48 months of age as childern who were age 8 years.
Among 8-year-olds

Black children were about equally likely to be identified with ASD as White children; Hispanic children were 1.3 times more likely to be identified with ASD than White, 1.4 times more likely than Black children, and 1.7 times as likely compared to Asian/Pacific Islander (A/PI) of the same age.

 

Among 8-year-olds, Black children were about equally likely to be identified with ASD as White children; Hispanic children were 1.3 times more likely to be identified with ASD than White, 1.4 times more likely than Black children, and 1.7 times as likely compared to Asian/Pacific Islander (A/PI) of the same age.

Values indicate prevalence per 1000.

The COVID-19 pandemic disrupted many aspects of life, including the ability to evaluate children for autism. Before the pandemic, 4-year-old children had higher ASD identification than 8-year-old children had when they were aged 4 years. In the first few months of the pandemic, 4-year-old children were less likely to have an evaluation than 8-year-old children had when they were the same age.

The COVID-19 pandemic disrupted many aspects of life, inlcuding the ability to evaluate children for autism. Before the pandemic, 4-year-old children had higher ASD identification than 8-year-old children had when they were aged 4 years. In the first few months of the pandemic, 4-year-old children were less likely to have an evaluation than 8-year-old children had when they were the same age.

What are the key take-away messages from MADDSP?

  • MN-ADDM identified a similar prevalence of ASD as other sites in the ADDM Network among both 8-year-olds and 4-year-olds.
  • In MN-ADDM, there were differences between the percentage of boys and girls identified, with more boys identified with ASD than girls. This is consistent with previous estimates in MN-ADDM and in the overall ADDM network.
  • MN-ADDM findings also reveal some differences in prevalence across racial and ethnic groups. Hispanic children in MN-ADDM were identified with ASD more frequently than White, Black, and Asian/Pacific Islander (A/PI) children at age 8. Among 4-year-olds, Black, Hispanic, and A/PI, children were more likely to be identified with ASD than White children.
  • MN-ADDM had the latest median age of diagnosis in 8-year-old children across all of the ADDM Network, with fewer than half receiving a comprehensive evaluation by age 3 years. However, it is encouraging that a higher percentage of 4-year-old children were identified with ASD in early childhood compared with 8-year-old children in MN-ADDM and all other ADDM sites; this means identification is happening earlier in the younger cohort. A diagnosis by an experienced professional can be considered reliable by age 2 years.

How can this information be useful?

MN-ADDM’s findings can be used to

  • Inform policies that promote early identification of ASD.
  • Plan for the service needs of individuals with ASD and provide training to ASD service providers and families.
  • Guide future ASD research.

Partners in Minnesota might consider different ways to

  • Increase access to early comprehensive evaluations by community providers.
  • Decrease age of ASD identification in educational and health care settings.

How and where was this information collected?

MN-ADDM uses a record review method. Specifically, this information is based on the analysis of data collected from the health and special education records of children who were 4 years old and 8 years old living in parts of three counties in 2020.

Tracking areas: Parts of Anoka, Ramsey, and Hennepin counties, including Minneapolis-
St. Paul

8-year-old children in tracking area: 16,150

  • 42% White
  • 23% Black
  • 11% Hispanic
  • 16% Asian or Pacific Islander
  • 1% American Indian or Alaska Native
  • 7% Multiracial

4-year-old children in tracking area: 16,326

  • 43% White
  • 23% Black
  • 11% Hispanic
  • 16% Asian or Pacific Islander
  • 1% American Indian or Alaska Native
  • 7% Multiracial

*Estimates may not sum to 100% due to rounding

“I use information from the Minnesota ADDM program in so many areas of my life. As a parent of a child with autism, a policy maker with the Department of Human services and MN Legislator the data is INVAULABLE to ensure we are creating and funding programs and services to support children and families with autism in MN. The significance of Minnesota’s prevalence and diagnosis age are important data points we need to make informed decisions and allocate funds for services now and in the future. It helps us understand the current needs and how to plan for the future.”

– KIM HICKS
MN House Representative and Parent of a child with Autism

Resources

RESOURCES TO CONNECT FAMILIES TO SERVICES AND SUPPORT IN MINNESOTA

HELP ME GROW
www.helpmegrowmn.org MDE.ECSE@state.mn.us
1-866-693-GROW (4769)

MINNESOTA AUTISM PORTAL
www.mn.gov/autism/

MINNESOTA DEPARTMENT OF EDUCATION
https://education.mn.gov/MDE/dse/sped/cat/aut/

AUTISM SOCIETY OF MINNESOTA
www.ausm.org/
410-767-0238

CDC’S LEARN THE SIGNS. ACT EARLY.
Jennifer Hall-Lande
Minnesota’s Act Early Ambassador
https://www.cdc.gov/ncbddd/actearly/ambassadors-list.html

UNIVERSITY OF MN AUTISM AND NEURODEVELOPMENT CLINIC, MASONIC INSTITUTE FOR THE DEVELOPING BRAIN
https://midb.umn.edu/patient-care
612-365-0115

CONNECT WITH MN-ADDM PROJECT Institute on Community Integration (ICI) University of Minnesota
https://addm.umn.edu/
autism@umn.edu
2025 East River Parkway, Minneapolis, MN 55414

Pages in this Report

  1. 2023 Community Report on Autism
  2. Executive Summary
  3. Key Findings from the ADDM Network
  4. A Deeper Dive
  5. Spotlight On: Progress in Early Identification Disrupted during the COVID-19 Pandemic
  6. Spotlight On: A New Pattern in Racial and Ethnic Differences
  7. Data for Action
  8. ADDM Network Site Snapshots Overview
  9. A Snapshot of Autism Spectrum Disorder in Arizona
  10. A Snapshot of Autism Spectrum Disorder in Arkansas
  11. A Snapshot of Autism Spectrum Disorder in California
  12. A Snapshot of Autism Spectrum Disorder in Georgia
  13. A Snapshot of Autism Spectrum Disorder in Maryland
  14. ›A Snapshot of Autism Spectrum Disorder in Minnesota
  15. A Snapshot of Autism Spectrum Disorder in Missouri
  16. A Snapshot of Autism Spectrum Disorder in New Jersey
  17. A Snapshot of Autism Spectrum Disorder in Tennessee
  18. A Snapshot of Autism Spectrum Disorder in Utah
  19. A Snapshot of Autism Spectrum Disorder in Wisconsin
  20. Glossary
  21. References
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