Protecting People

by Reducing Complications of Blood Disorders and Genetic Conditions

What to know

  • People with blood disorders are living longer than ever before but with far too many preventable complications.
  • These blood disorders have serious, sometimes fatal, health consequences and cost our healthcare system billions of dollars every year.
  • CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) increases understanding of blood disorders and genetic conditions and uses research to advance care.
  • NCBDDD works to promote health and reduce health inequities for people with or at increased risk for these conditions.
A happy healthy senior couple

Highlights

A happy couple enjoying a camping trip
1 in 76 Americans are affected by a blood disorder.

As a result of NCBDDD work on ...

Hemophilia treatment centers
People with hemophilia and other bleeding disorders are living longer, healthier lives with fewer complications thanks to NCBDDD data from more than 74,000 patients at over 140 Hemophilia Treatment Centers across the nation.

Public health approach to blood disorders
People at highest risk of developing a blood clot use our tools to recognize symptoms and seek care, improving outcomes for the 900,000 people affected by blood clots every year.

Hemophilia
People with hemophilia are experiencing fewer serious and costly complications as a result of NCBDDD science showing the benefits of early detection of inhibitors and joint bleed prevention.

Thalassemia
People with thalassemia are receiving safer blood transfusions and avoiding potential infections as a result of NCBDDD’s monitoring of blood and blood products and data on transfusion complications for people with thalassemia.

Budget

Budget Line

FY23

Hemophilia Treatment Centers

$5.1M

Public Health Approach to Blood Disorders

$4.4M

Hemophilia

$3.5M

Thalassemia

$2.1M

Sickle Cell Research

$6.0M

Total 

$21.1M